10 questions I usually get when asked about chronic pain
admin 5 May, 2010
1. WHY DID IT HAVE TO BE ME?
I know that we’re not evil and want other people suffer, but you have to admit that you probably wondered about it once. Illness doesn’t choose, it strikes randomly no matter if you’re good or bad, rich or poor. You can be sure that it isn’t any kind of divine judgment.
2. HOW AM I GOING TO MANAGE LIVING WITH IT EVERY DAY FROM NOW?
It is a hard one. There is probably no good answer besides, you’ll just have to somehow. There is no other choice for you. You won’t be able to quit it like it was some job. You have to keep going and hope for a change for the better. See what you can do about improving you situation and try getting the best of what you have now.
3. WHY ARE OTHER’S SO MEAN AND DON’T UNDERSTAND US?
It is best to say they have no idea as to what it is really. Being in pain at all times is so much worse than any kind of pain they might ever felt. The just can’t know, I don’t blame them and surely I don’t want them to feel such kind of pain. In many cases you become a burden to the family, they would like to carry on with their pain-free, happy lives, but there’s a problem, you. Of course in most cases you created the bad atmosphere not even knowing. Family members and friends can only have so much compassion and patience. If you were in their place, you’d probably be irritated with yourself nagging them all the time as well. You have to remember that they do love you, and that’s why you can bomb them with bad mood all the time or it will become bad. Many family members probably don’t know how much hard time you had with your problem. You had to visit countless doctors, and still suffer from pain. When people hear about you being ill, hope that after time you’ll get better, but when that isn’t happening, they become tired with your condition. You are limited in many things, you get tired really easily, this means that no more sports, at least not, as it used to be. They are also afraid that they might get the same disease as you.
4. WHAT CAN I DO TO GET HELP?
If you’re suffering from a chronic disease, you probably have visited a lot of different doctors already. If the previous doctor did not tell you anything you did not know before, don’t be discouraged. Try again, visit someone else, seek the best doctors there are. Some doctors are more competent than the others, you have to keep looking until you find a competent one. Finding someone who is specialized and knows how to help you may take some time, but it is certainly worth it. If the doctor you visit now doesn’t help you, visit someone else. Maybe the new one will have a better opinion, notice something the others did not.
5. DO YOU EXPERIENCE REALLY HARD TIMES?
I can say that there is probably no one who did no experience a really hard time. I had to live with my condition for 23 years already so it is almost a given that I had to have a worse time. Over time I learned that even if the situation is really bad, you can’t just sit around and cry. You have to do something to make the situation improve, just wishing for it to get better won’t help. In the process of learning all of that, I made many mistakes. I lost many friends, gave my husband hard times but the „true friends” stayed by my side. My husband and daughter also stay with me, they didn’t leave me be when I needed them the most, I could count on them.
6. CAN YOU GET USED TO BEING IN PAIN EVERY DAY?
No, you can’t.
7. HOW CAN I LEARN OPTIMISM WHEN I HAVE CHRONIC PAIN?
It might be hard to become optimistic, but it is surely possible. You can find your optimism by seeking competent doctors. I mean, the ones that will actually help you. Tell me, won’t you be even a bit optimistic if you finally get some treatment that works. In my case, physical therapy helped a lot. I try to do it every day even if there seems to be no energy left in me. I take as little medications as I can and avoid people who could ruin my mood.
8. ARE PRIORITIES IMPORTANT?
Yes they are, you have to keep track of things. Let’s say you have half-cup of sugar, with that amount, there is no point in trying to bake a cake that uses 2 cups. You have a lot less energy than you used to have, so you can’t do all the things you used to. You must learn to do the most important things first and if you have any energy left do the next thing on the list.
9. ARE DIETS IMPORTANT WHEN LIVING WITH CHRONIC DISEASE?
Diets and learning about things you should and should not eat is a really big subject. Over time you get to know what foods are bad for you and what are good. If you’re taking NSAID’s you have to keep your stomach full or just take those medications with food. You have to look for organic foods, they don’t have all those pesticides and chemicals that are bad to your body, especially since it is already compromised. You have to plan your diet. Don’t just recklessly eat what is closest to you at the moment. Vegetables are good, eat the whole variety of colors. Fish, lean meat, poultry are all good as well and can exchange beef in your diet. You should avoid frying your foods. If you need to, use olive oil. As for cooking vegetables, use the microwave or steam cook them. That way they contain all the good vitamins, while boiling them will wash out all the good stuff. There are tons of advice on diets. You just have to read it. It is extra fun when trying to cook a new dish.
10. DOES SPIRITUALITY PLAY AN IMPORTANT ROLE IN LIFE OF CHRONIC PAIN?
Spirituality is important, it helps you go through the tough moments of your life. You can find peace and comfort in a life filled with pain. It can be a church or a religion that will help you achieve that. It might be nature, sheer wilderness where they will find peace of mind. While other people will find the same thing when embraced by a loving family. In my case, I feel peace of mind when I pray and when I have time to myself. I might read some elating journals or books. Watching the news, knowing what is going on in the world can help sometimes as well, but it’s too much for me. Emotions are really important as well. Joy, laughter, happiness, are all vital. Being sad, angry should be avoided, and avoid situations or meeting people who could cause negative emotions in you. Be sure to take care of yourself physically and spiritually. If you’re not in shape, you won’t be able to give anything good from yourself to others.
Life with Chronic Pain Blog
No comments yet.